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RESEARCH GROUP
CHILD DEVELOPMENT/ CHILDHOOD DISABILITIES
RESEARCH ACTIVITIES CARRIED OUT
We are a group looking for innovative solutions to maximize functional levels of children with childhood disabilities in the low middle income settings. Our aim is to conduct multi-disciplinary research in childhood developmental disorders and we strive to developlocally appropriate and culturally adopted assessment and intervention solutions throughevidence based practices.
We look at research opportunities covering the life course approach from birth to youth-hood.
Our research geographies span from the Gampaha District to national and multi-centre international studies aiming the low middle income countries.
One land-mark project undertaken by us initiated a CP registry for Sri Lanka and will generate the prevalence of CP for Sri Lanka. Another major milestone achieved by our group is the locally validated preschool assessment tool development: Ragama Early Assessment of Children (REACh) tool. This will be nationalised in the local pre-school settings.
We look at research opportunities covering the life course approach from birth to youth-hood.
Our research geographies span from the Gampaha District to national and multi-centre international studies aiming the low middle income countries.
One land-mark project undertaken by us initiated a CP registry for Sri Lanka and will generate the prevalence of CP for Sri Lanka. Another major milestone achieved by our group is the locally validated preschool assessment tool development: Ragama Early Assessment of Children (REACh) tool. This will be nationalised in the local pre-school settings.
SRI LANKAN CEREBRAL PALSY REGISTER
The Sri Lankan CP Register (SLCPR) is a confidential database of clinical and demographic information about individuals with cerebral palsy (CP). Information collected about each person with CP includes birth details, type and severity of cerebral palsy, other associated impairments, and parent demographics. By collecting this information researchers can gain a better understanding of CP in Sri Lanka.
Participation in the CP register is voluntary. All information collected for the SLCPR is confidential and families can choose to withdraw from the register at any time. The Sri Lankan CP Register has been approved by the Ethics Review Committee, Faculty of Medicine, University of Kelaniya (+94 11 296 1000).
The aims of the SLCPR are to:
- Gain a better understanding of how many people have CP in Sri Lanka and how it affects them
- Improve health and education planning for people with CP
- Improve our understanding of the causes of CP
- Develop and evaluate preventative strategies
- Promote CP research
Currently, the University of Kelaniya is working with CP Lanka, health professionals and families to collect data for children with CP born in or living in the Western and Eastern Provinces.
It is hoped that in the future the SLCPR can be expanded to be a nationwide register.
Parents and health professionals, we need your help!
Registration is easy!
- Step 1: Create a secure username and password by entering your details here: Become A Member
- Step 2: Login and complete the questions regarding CP and health information.
Sri Lankan Cerebral Palsy Register Information sheet
Cerebral Palsy Clinical Classification Forms:
- Gross Motor Function Classification System E&R Form
- Gross Motor Function Classification System Descriptors and Illustrations
- Manual Ability Classification Form
- Communication Function Classification System Form
- Functional Communication Classification System Form
- Viking Speech Scale Form
- Eating and Drinking Ability Classification System – Algorithm
- Eating and Drinking Ability Classification Form
- MRICS Classification
REGISTER HERE >>>
PUBLICATIONS
[Top 5 high-impact indexed papers]
- Caldera AV, Wickremasinghe AR, Muttiah N, Godamunne PKS,S. P Sumanasena et al REACh for the Preschoolers; A Developmental Assessment tool for 2-5 year old Children in Sri Lanka. BMC Pediatrics 2022 in print
- Thayyil S, Pant S, et al and Sumanasena SP, Hypothermia for moderate or severe neonatal encephalopathy in low and middle income countries. Lancet Glob Health 2021; 9: e1273–85 Published Online August 3, 2021 https://doi.org/10.1016/S2214-109X(21)00264-3.
- Sumanasena SP, Wanigasinghe J, Arambepola C, Sri Ranganathan S, Muhandiram E.Effect of intramuscular ACTH versus oral prednisolone on the developmental trajectories of children with West syndrome over 24 months: A randomised control study. Eur J Paediatr Neurol. 2021 May;32:98-105. doi: 10.1016/j.ejpn.2021.04.003. Epub 2021 Apr 14. PMID: 33894665.
- Madhushika T, Sumanasena SP, Kitnasamy G et al. A protocol for the Sri Lankan Cerebral Palsy Register pilot study. BMJ Open. 2020. In print.
- Sumanasena SP, Wanigasinghe J, Arambepola C, Sri Ranganathan S, Muhandiram E. Developmental profile at initial presentation in children with infantile spasms. Dev Med Child Neurol. 2019 Nov;. doi: 10.1111/dmcn.14205.
- Sumanasena, SP, Vipulaguna, DV, Mendis, MM, Gunawardena NS. Beyond survival: 5-year neurodevelopmental follow-up of a cohort of preterm infants in nColombo, Sri Lanka, Paediatrics and International Child Health, 2017. https://doi.org/10.1080/20469047.2017.1380944
GROUP MEMBERS
Connect with us
Faculty of Medicine,
University of Kelaniya,
P.O Box 6,
Thalagolla Road,
Ragama,
Sri Lanka
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dummy +94 11 2961000
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dummy+94 11 2958337
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dummy info.med@kln.ac.lk
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dummy deanmed@kln.ac.lk